Originally posted 10/15/21
On Saturday Oct 2, 2021, I had a stroke. I was talking to my family, and I reached to open the door and I couldn’t. I didn’t remember how a lock worked. I was scared. I walked over to the chair, sat down and the words wouldn’t come. I knew what I wanted to say but I couldn’t say it. My family was understandably scared. 911 was called. They arrived in minutes. My blood pressure was high. I got to take my first ride in an ambulance complete with an IV started along the way. Once at the ER, I had a CT scan and a chest x-ray, and of course the obligatory Covid test. Neurology was consulted and the decision was made to start TPA, a clot busting treatment. I was moved to the ICU and more tests were run. They checked out my heart and carotid arteries and did an MRI. I was soon able to form basic words, but the more complex words still wouldn’t come.
On Sunday the neurologist was able to confirm a stroke to my frontal lobe localized to my speech and language center. Those that know me know that an attack on my speech and language is a huge blow! The mystery was now why did it happen. I had 16 vials of blood drawn to complete a clotting study. I had an PT and OT eval, and I moved to a regular room on the neurology floor. I struggled with language but that was thankfully my only deficit. Unfortunately, that meant I couldn’t eat without a swallow study-which the hospital didn’t do on Sunday. I hadn’t eaten since dinner on Friday! Needless to say, I was hungry and grumpy. I had to practice saying my name and birthdate as those are questions that everybody who enters my hospital room asked. Communicating was exhausting! I had to think about forming every word.
On Monday I was visited by the Stroke Liaison to talk through what to expect now that I have had I stroke. He discussed therapies, medications, diet, and exercise and my increased stroke risk. I also finally had the swallow study!! I could eat!!! I was able to order a lunch tray, and my nurse gave me some juice and cookies to hold me over. My neurologist visited as I was getting my lunch to tell me I could go home. They had done all the tests and I was stable, so there was nothing more they could in the hospital. I would be sent home with new meds, a 30-day heart monitor, and an order for outpatient speech therapy. They still weren’t sure of a cause, they suspect that it was the estrogen I was taking for hormone replacement. I was immediately taken off my hormone.
I know I was very fortunate that my stroke was localized, and the only long-term effect was my language. That is truly the best outcome. Still, it doesn’t feel the best. It feels like I am trapped in my head, knowing what I want to say but being unable to say it, write it, or type it. It is interesting how it didn’t just impact my speech; I struggle to write and type too. Every word is a conscious thought in how to form it verbally, how to spell it, or how to form the letters. I spend my days practicing. It is frustrating! Theoretically I will get my language back over time. Time will tell…
(Just for reference, this post took me almost 2 hours and was read and edited by a friend before posting)
